Geht es jetzt wieder los ?

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lisa_kotschi antwortete auf Geht es jetzt wieder los ?

16 Sep. 2016 08:59

lisa_kotschi
Offline

1139 Beiträge seit
27 Oktober 2009

Mehr

Liebe Forengemeinschaft,

unser Rudi hat am 11. September den Kampf gegen das Myelom verloren. Erstmal wurde er 1999 diagnostiziert, seine Wirbelsäule musste mehrmals operiert werden. Danach konnte er 11 Jahre lang ein gutes, aktives Leben mit seiner Familie am Gardasee verbringen, bevor 2010 das MM wieder behandlungsbedürftig wurde.

Rudi gehörte zu den erfahrensten Myelom-Patienten. Seit Beginn des Forums 2004/2005 hat er Betroffene mit seinem Wissen, seiner Erfahrung und großem Einfühlvermögen unterstützt.

Wir haben uns von ihm unter Bye-Bye Rudi verabschiedet und gewürdigt.

Dieser Thread selbst wird hier geschlossen.

In Erinnrung an Rudi
Lisa Kotschi, AMM-Online

Dieses Thema wurde gesperrt.

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Jeanny150765 antwortete auf Geht es jetzt wieder los ?

05 Sep. 2016 15:08

Jeanny150765
Offline

1161 Beiträge seit
17 Juni 2010

Mehr

Lieber Rudi,

wieder ein paar Tage sind vergangen und ich hoffe,das es Dir einigermaßen
geht.Bist Du noch zu Hause?

Hoffe bald wieder von Dir zu hören(lesen).

Liebe Grüße

Jeanny

Dieses Thema wurde gesperrt.

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MarcWen antwortete auf Geht es jetzt wieder los ?

29 Aug. 2016 20:18 - 29 Aug. 2016 20:21

MarcWen
Offline

364 Beiträge seit
09 Juni 2011

Mehr

Ach Rudi, da machst du ja aktuell auch so einiges durch.
Bin nun auch schon wieder knapp eine Woche stationär.

Die letzte Therapie Bendamustin hat leider nichts gebracht. Meine Zellchen scheinen sehr widerstandsfähig zu sein. Haben die Allo Tx überstanden und alles was man so in den letzten Jahren versucht hat.

Die letzten 2 Wochen hat es sehr stark umgeschlagen, sämtliche Myelomwerte durch die Decke (Ca, CRP,...), Blutbildung gelitten, Hb unter 8 und das erschreckende, akutes Nierenversagen. Kreatinin über 5.

Bin seit Mittwoch also in Therapie und meine Nierchen wieder ans laufen zu bekommen.

Dazu scheint irgendwie immer alles schief zu gehen, starke Gelenk und Muskelschwerzen, links wieder eine Rippe gebrochen, links einen Fehlversuch für Portanlage, hatte nicht geklappt. Dann mit hängen und gut zureden rechts eine Portanlage an die Schulter, vor 2 Wochen bei den Bluttransfusion falsch angeschlossen, riesiger Blutaguss und Schmerzen. Konnte also über eine Woche meine Arme nicht bewegen. Aktuell geht es was besser, mal schauen was so noch kommt.

Rudi dir auch alles Gute und halte uns auf dem Laufenden.

Marcus

Letzte Änderung: 29 Aug. 2016 20:21 von MarcWen.

Dieses Thema wurde gesperrt.

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joseph antwortete auf Geht es jetzt wieder los ?

28 Aug. 2016 12:15

joseph

0 Beiträge seit

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12 August 2026

Mehr

Hi Rudi

Das mit dem Wasser ist natürlich ein grosses Hinderniss, gibts dazu keine anderen Alternativen als ein Drainagezugang ?

Indirekt denk ich da an eine Dialyse zbs.

www.gesundheits-fakten.de/wasser-in-der-...und-gegenmassnahmen/

Daumendruck

Joseph

Dieses Thema wurde gesperrt.

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Jeanny150765 antwortete auf Geht es jetzt wieder los ?

27 Aug. 2016 21:37

Jeanny150765
Offline

1161 Beiträge seit
17 Juni 2010

Mehr

Lieber Rudi

vielen lieben Dank ,das Du geschrieben hast,wie es Dir geht.
Allerdings hatte ich mit besseren Nachrichten gerechnet.

Wann musst Du denn eigentlich wieder nach Würzburg und was
wird überhaupt gerade unternommen?

Mensch schon wieder Wasser...kann man denn da garnichts gegen machen?
Wahrscheinlich wieder in die Klinik!!??

Alle guten Wünsche können doch nicht umsonst sein.
Ich bin sehr traurig und weiß garnicht,was ich Dir wünschen kann.Ich hoffe
weiterhin....Immer wieder eine andere Baustelle.

Lieber Rudi...bitte schreib einfach nur,wenn Du in der Lage dazu bist..ich frage
nur hin und wieder,weil ich mir Sorgen um Dich mache.

Aber Du bist wenigstens zu Hause...bei Deiner Familie.

Ich wünsche Dir weiterhin gute Besserung und werde heute wenn ich ins Bett
gehe einigen da oben Bescheid sagen,das Sie Dir endlich eine Besserung verabreichen.
Du weißt schon wie ich es meine,bin ja nicht verrückt,sondern auch nur verzweifelt.

Bis bald lieber Rudi

Jeanny

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rudi antwortete auf Geht es jetzt wieder los ?

27 Aug. 2016 16:59 - 27 Aug. 2016 17:02

rudi
Autor
Offline

2203 Beiträge seit
23 Oktober 2009

Mehr

Hallo,
Die Sepsis und Lungenentzündung hat man schon kuriert im Kra-Haus Balingen. Dann war der Schwerpunkt eine Totale Entwässerung des Körpers, vor allem vom rechten großen Plauraerguss. Da hatte ich ja fast 2 Wochen eine Drainage mit einem Anschluß für einen Sammelbeutel. Da flossen in 24 Stunden am Anfang 1 Liter raus und selbst nach 2 Wochen noch immer 500ml.
Da konnte man sich gut vorrtsellen, wenn die Drainage wegkommt, wielange es dauert, bis der Pleuaraum wieder vollgelaufen ist.

Bei der Entlassung mit zwei Beutel Blut aufgefüllt, war ich noch recht schwach. Am Gardasee geht es mir nicht besser , das Wasser ist zurück und drückt schon wieder auf die Lunge. Ich bin total kurzatmig bei der geringsten Belastung und das bleibt auch so wegen den Organschäden und dadurch sekundär bedingten Wassereinlagerungen. Albumin ist auch sehr niedrig bei 2,1. Albumin hällt ja die Flüssigkeit in den Blutbahnen. Bei zu niedrigem Albumin drückt das Wasser in den Blutbahnen durch die Gewebewände ins umliegende Gewebe ein und sorgt für Ödeme.

Mal sehen wie es weitergeht?

LG
Rudi

Heilung ist ein individueller Prozess, der sehr stark an das persönliche Bewusstsein gebunden ist. Daher kann kein Mensch einen anderen Menschen heilen sondern immer nur auf dem Weg zu seiner persönlichen Heilung begleiten.

rudiversal.wordpress.com

Letzte Änderung: 27 Aug. 2016 17:02 von rudi.

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