Zweite Hochdosis, welche Voraussetzungen?

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Dany antwortete auf Zweite Hochdosis, welche Voraussetzungen?

08 Juni 2016 16:51 - 08 Juni 2016 16:51

Dany
Autor

0 Beiträge seit

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12 August 2026

Mehr

Hallo Kirsten,

vor einer Gefährdung des Rückenmarks hatte ich auch Angst bekommen, deshalb war ich letzte Woche in der Orthopädie. Akut gibt es da wohl keine Gefahr, aber ich gehe zukünftig auch in regelmäßigen Abständen zur Kontrolle.

Liebe Grüße und alles Gute
Dany

Letzte Änderung: 08 Juni 2016 16:51 von Dany.

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Tetti1958 antwortete auf Zweite Hochdosis, welche Voraussetzungen?

08 Juni 2016 12:18

Tetti1958
Offline

335 Beiträge seit
27 Dezember 2015

Mehr

Hallo Dany, ich frage das mit den Wirbeln, weil bei mir auch ein Wirbel eingebrochen ist und ich mehrere Osteolysen habe. Am Anfang hat man sich auch nur auf meine Chemo Therapie und Stammzellentrans. konzentriert , bis ich das Thema dann selber noch mal angesprochen habe. Jetzt hat man sich die Bilder noch mal angesehen und jetzt heißt es, dass ich den Wirbel alle drei Monate kontrollieren lassen soll. Es könnte ja bezüglich des Rückenmarks gefährlich werden.
Lieben Gruß, Kirsten

Et häät noch immer joot jejangen

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Dany antwortete auf Zweite Hochdosis, welche Voraussetzungen?

07 Juni 2016 16:11 - 07 Juni 2016 16:14

Dany
Autor

0 Beiträge seit
12 August 2026

Mehr

Hallo, ihr Lieben,
Danke für eure Antworten

Ich werde auf jeden Fall die Werte abwarten, um mich dann zu entscheiden. Die Nebenwirkungen, insbesondere die Möglichkeit des Zweittumors, sind einfach zu gravierend.
Was die Haare betrifft, liebe Christine, sehe ich mit meinem Fellchen besser aus als vorher (ich hatte immer gar schreckliche Haare)

, deshalb lass ich das als Kriterium mal beiseite

Danke Dir für die Infos zu meiner Frage nach den Plasmazellen

Meine Wirbelbrüche sind gar nicht behandelt worden. Ich nehme ab und zu Schmerzmittel und anscheinend ist alles wieder verheilt. Ich bin allerdings durch die Deckplattenbrüche ein paar Zentimeter kleiner. Ich weiß nicht, ob das relevant ist, aber meine Wirbel sind nicht einfach so gebrochen, sondern erst durch heftiges, mechanisches Einrenken durch den Orthopäden. Da war meine Diagnose noch nicht bekannt und er hat mich auf Lumbago behandelt.

Letzte Änderung: 07 Juni 2016 16:14 von Dany.

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Tetti1958 antwortete auf Zweite Hochdosis, welche Voraussetzungen?

07 Juni 2016 00:01

Tetti1958
Offline

335 Beiträge seit
27 Dezember 2015

Mehr

Hallo Dany

In deinem Profiel lese ich, dass du auch Wirbelbrüche hast. Darf ich fragen, wie diese behandelt werden/wurden. Bekamst du Bestrahlungen? Schmerzmittel?

Lieben Gruß, Kirsten

Et häät noch immer joot jejangen

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joseph antwortete auf Zweite Hochdosis, welche Voraussetzungen?

06 Juni 2016 22:20

joseph

0 Beiträge seit
12 August 2026

Mehr

christine schrieb: Wenn du jetzt schnell ein HD durchziehst, hast du im Herbst wieder Haare!

Hi Christine

Irgendwie bekam ich bei der Aussage ein Schmunzeln ins Gesicht:whistle: :whistle: :whistle: :whistle: :whistle:

Wenn sie keine zweite macht ........ hat sie besseres Haar für den Winter :unsure:

Ich würde auf keinen Fall eine HD abhängig machen von den Haaren, sondern rein auf die Werte

LG

Joseph

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christine antwortete auf Zweite Hochdosis, welche Voraussetzungen?

06 Juni 2016 21:29 - 06 Juni 2016 21:40

christine

0 Beiträge seit
12 August 2026

Mehr

Man kann keine Plasmazellen mit Bluttests nachweisen! Es gibt verschiedene Arten, Myelomzellen zu zählen. Ganz altmodisch und sich noch nicht verkehrt: Zählen unter dem Mikroskop - Das funktioniert aber auch nicht immer, weil man je nach Probenahme (Teststelle) mehr oder weniger Plasmazellen hat.

Es gibt aber heute wesentlich "feinere" Tests um Chromosomen- und auch Genveränderungen nachzuweisen. Nicht alles wird in Deutschland "immer" gemacht, manche Test werden auch nur in Studien durchgeführt.

Wenn man die Berichte über die MRD Studienergebnisse liest, denke ich schon dass es eine gute Idee ist, nochmal eine HD zu machen. Aber ich wiederhole mich - sorry :silly:

Wenn du jetzt schnell ein HD durchziehst, hast du im Herbst wieder Haare!

Gruss

Letzte Änderung: 06 Juni 2016 21:40 von christine.

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