Plasmozytom mit Herzschwäche

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Felizitas antwortete auf Plasmozytom mit Herzschwäche

24 Juli 2016 10:40

Felizitas
Autor

0 Beiträge seit

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12 August 2026

Mehr

Hallo Alexander,
lieben Dank nochmal. Da die LaborWerte, auch die Leichtketten seit Mai stabil geblieben sind, muss ich mich jetzt zuerst um meine Herzschwäche mit der verdickte HerzWand kümmern.
Alles Gute
Elfriede

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

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Alexander antwortete auf Plasmozytom mit Herzschwäche

24 Juli 2016 01:35

Alexander

0 Beiträge seit
12 August 2026

Mehr

Hallo Elfriede,

das ist sehr individuell, abhängig auch von Deiner speziellen Ausprägung des multiplen Myeloms.

Wenn Du bei einem Wert von 500 schon Veränderungen spürst, z.B. schaumigen Urin, solltest Du mit deinem
Arzt darüber reden, wichtig ist auch die Veränderung über die Zeit, z.B. ob der Wert nach 1 Monat stabil ist oder stark ansteigt.

Alles Gute
Alexander

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

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Felizitas antwortete auf Plasmozytom mit Herzschwäche

23 Juli 2016 10:45 - 23 Juli 2016 17:58

Felizitas
Autor

0 Beiträge seit
12 August 2026

Mehr

Hallo Alexander,
herzlichen Dank für die schnelle Antwort. Bei mir sind in den letzten 2 Wochen sämtliche Untersuchungen gemacht worden, auch Herz , Lunge usw.,da man Amelyodose vermutet hat.
Meine LaborWerte sind etwas zu niedrig, aber soweit alles gut. Bei welchen Leichtkettenwert hast Du mit der Chemo begonnen?
Meine verdickte HerzWand macht mir die Atemnot.
Liebe Grüße
Elfriede

Letzte Änderung: 23 Juli 2016 17:58 von lisa_kotschi.

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Alexander antwortete auf Plasmozytom mit Herzschwäche

22 Juli 2016 22:39 - 23 Juli 2016 17:57

Alexander

0 Beiträge seit
12 August 2026

Mehr

Hallo Elfriede,

die Atemnot kann verschiedene Gründe haben,
die alle während der "normalen" Behandlung auftreten können
und bei mir zeitweise auch schon aufgetreten sind:
* Herzprobleme - einige Medikamente gehen definitiv aufs Herz
* Mineralien im Blut stimmen nicht, z.B. Calcium, Magnesium, Kalium, Natrium
außerhalb der Norm
* Lungenaustauschvolumen erniedriegt - laut Ärzten nur symptomatisch behandelbar mit Kortison
* Hb erniedriegt - bei mir z.B. schon unter 10 problematsch
* Blockade der Wirbelsäule / Irritation der Nerven
* Infektion / Allergie

=> Einfach der Reihe nach alles abchecken lassen, es muß nicht ernstes /dauerhaftes sein

Alles Gute
Alexander

Letzte Änderung: 23 Juli 2016 17:57 von lisa_kotschi.

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Plasmozytom mit Herzschwäche wurde erstellt von Felizitas

22 Juli 2016 21:00 - 23 Juli 2016 17:56

Felizitas
Autor

0 Beiträge seit
12 August 2026

Mehr

Guten Abend ,
ich habe lange nichts von mir hören lassen, mir ging es seit Herbst 2015 nach der letzten Chemotherapie mit Bortezomib bis vor ungefähr 1 Monat ganz gut.
Seither habe ich große Probleme mit der Atmung ! Da ich eine Herzwand verdickung habe, wurde ich in den letzten 11 Tagen genau auf Amelyodose untersucht, zum Glück negativ. Meine freien Kappa Leichtketten sind bei etwa 500ml, dass IGG bei 18.
Da ich aber beide Chemotherapien wegen zu niedriger Trombozyten abbrechen mußte, möchte ich nach Möglichkeit die Therapie noch nicht beginnen. Nur ob sich durch die Therapie auch die Atemnot bessern würde?
Kann mir jemand einen Rat geben?
Vielen Dank im voraus und für Euch alles Gute!
Elfriede

Letzte Änderung: 23 Juli 2016 17:56 von lisa_kotschi. Begründung: Schreibweise Plasmozytom

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