Frühes Rezidiv

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joseph antwortete auf Frühes Rezidiv

29 Juli 2016 23:24

joseph

0 Beiträge seit

Deprecated: DateTime::__construct(): Passing null to parameter #1 ($datetime) of type string is deprecated in /www/htdocs/w0185eeb/myelom.villa-ester.de/libraries/src/Date/Date.php on line 96
12 August 2026

Mehr

Tine11 schrieb: Hoffentlich wissen die in Großhadern mehr...
Viele Grüsse
Tine

Kann man nur hoffen

Joseph

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

Deprecated: Creation of dynamic property Kunena\Forum\Libraries\Layout\KunenaLayout::$profile is deprecated in /www/htdocs/w0185eeb/myelom.villa-ester.de/libraries/kunena/src/Layout/KunenaBase.php on line 575

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Tine11 antwortete auf Frühes Rezidiv

29 Juli 2016 21:40 - 29 Juli 2016 21:42

Tine11
Autor

0 Beiträge seit
12 August 2026

Mehr

Hallo Barbara, Mira und Joseph,
vielen Dank für Eure Antworten.
Da die Onkologin in einer ambulanten Praxis sich auf Grund der ermittelten Werte im Rahmen der Kontrolluntersuchung nicht auf die weitere Vorgehensweise festlegen möchte, hat sie auf das Knochenzintigramm und auf die Kollegen mit mehr Erfahrung in Großhadern verwiesen. Dort werden wir dann auch mehr erfahren, wie es weitergehen soll. Wir sind sehr verunsichert, da das frühe Rezidiv ja wohl auf eine aggressive Form des MM hinweist :evil:
Irgendwie haben wir es im Unterbewusstsein doch irgendwie vermutet, da sie seit einigen Wochen wieder stark schwitzt, dies jedoch auf Infekte mit Fieber und deren Nachwirkungen geschoben.
Die HD's mit STZ's waren eine Grenzerfahrung, zumal sich meine Mutter noch einen Keim bei der ersten Behandlung eingefangen hatte. Vor und zwischen der HD's mussten dann auch noch die Nebenhöhlen operiert und ein Infekt im Krankenhaus stationär mit Antibiotikum behandelt werden. Aktuell ist sie mit einem festsitzenden Husten in Behandlung. Alles in Allem sind die Kräfte ganz schön verzehrt worden und die Angst ist wieder voll da.
Hoffentlich wissen die in Großhadern mehr...
Viele Grüsse
Tine

Letzte Änderung: 29 Juli 2016 21:42 von Tine11.

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joseph antwortete auf Frühes Rezidiv

29 Juli 2016 20:56

joseph

0 Beiträge seit
12 August 2026

Mehr

Tine11 schrieb: im Oktober 15, sowie im Februar 16 wurde bei meiner Mutter jeweils eine HD mit autologer STZ durchgeführt. Nach nun nur vier Monaten ist das MM wieder da

Hallo Tine

Du schreibst wieder da, normal muss man 100 Tage nach der Applasiephase warten, bis man definieren kann, was die HDs gebracht haben, ...... es scheint so, dass nicht das gewünschte Ziel erreicht wurde, wo deine Mutter nicht alleine ist mit solchen Resultaten.

Mit 68 , eine Doppelte HD mit SZT , wie war der Gesundheitszustand deiner Mutter vor der Therapie , war sie da auch schon schwach ?

Heute gibt es einige Alternativen in der Medikation, zwar auch nicht ohne Nebenwirkungen, aber Velcade, Revlimide, Pomalidomide, Ixazomib ....... usw., die eingesetzt werden können , auch in reduzierter Dosis um den geschwächten Körper nicht noch weiter runter zu drücken

Was sagt der Onkologe in Groshadern ?

LG

Joseph

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Mira antwortete auf Frühes Rezidiv

29 Juli 2016 20:31

Mira
Offline

419 Beiträge seit
03 Februar 2014

Mehr

Hallo Tine,
Nur zur Info: mein Orthopäde hat bei mir mal ein Knochenszintigramm machen lassen. Resultat: lauter schwarzer Flecken, das MM wäre aktiv und würde die Knochen zerstören. Ich sofort zum Hämatologen, der mich dann ohne Termin dazwischen genommen hat und meinte "Mädel nicht verrückt machen lassen, diese Diagnostik taugt überhaupt nichts beim MM". Er hat dann sicherheitshalber noch ein par MRT's machen lassen und siehe da: kein MM Befall. Zum Glück sind die MRT's auch sehr zeitnah gemacht worden. Danach habe ich mein Orthopäden ein par Takte dazu gesagt. Der meinte dann, er kann nichts dafür wenn der Radiologe so ein "Mist" erzählt und es ging ihm nicht ums MM sondern um die Arthrose. Wieso ich nicht erst zu ihm gekommen wäre. Ja klar, wenn mir der andere was von einem "aktiven MM das meine Knochen zerstört erzählt" dann gehe ich erst mal zum Orthopäden.
Aber: auch nach eine HD: das MM ist nie ganz weg. Deswegen heisst bestenfalls "komplette Remission" und (noch) nicht Heilung. Und es gibt mittlerweile sehr gute neue Medikamente um die Krankheit zu unterdrucken. Versuche ruhig zu bleiben und warte die Besprechung mit den Onkologen ab. Ich drucke euch die Daumen dass alles doch nicht so schlimm ist.
LG
Mira

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audbei antwortete auf Frühes Rezidiv

29 Juli 2016 19:35

audbei
Offline

40 Beiträge seit
06 Februar 2015

Mehr

Hi Tine,

Zur Behandlung des MM Deiner Mutter sollte es noch mehrere medikamentöse Möglichkeiten geben. Dazu wirst Du sicherlich noch Antworten erhalten, das Ende der Fahnenstange kann damit noch schön weit weg sein.

Ich möchte Dich auf einen Thread zum Sinn und Unsinn von "Skelettszintigraphie" bei MM aufmerksam machen. Der lief im Feb. 2015 genau unter diesem Namen. Wenn Du das als Suchbegriff eingibst, kommst Du schnell hin. Der Thread endete mit Knatsch, aber vorher war er informativ.

Viele Grüße
Barbara

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Frühes Rezidiv wurde erstellt von Tine11

29 Juli 2016 18:52

Tine11
Autor

0 Beiträge seit
12 August 2026

Mehr

Hallo Zusammen,
im Oktober 15, sowie im Februar 16 wurde bei meiner Mutter jeweils eine HD mit autologer STZ durchgeführt. Nach nun nur vier Monaten ist das MM wieder da und der Körper noch von den Strapatzen geschwächt.
Jetzt wurde ein neues Knochenzintigramm erstellt, welches nächste Woche nach Auswertung bzgl. weiterem Vorgehen in der Klinik besprochen werden soll.
Eine Allo kommt auf Grund des Alters nicht in Frage.
Ich frage mich, ob andere Therapien hier helfen können. Sind verzweifelt.
Viele Grüsse
Tine

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