Gute und schlechte Nachrichten und eine Frage

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Tetti1958 antwortete auf Gute und schlechte Nachrichten und eine Frage

31 Aug. 2016 22:49

Tetti1958
Offline

335 Beiträge seit
27 Dezember 2015

Mehr

Das ist schön! Wenigstens finanziell ein wenig Luft. Ich wünsche euch, dass es deinem Mann bald besser geht und ihr wieder Hoffnung schöpfen könnt.

Herzlichen Gruß an deinen Mann,
Kirsten

Et häät noch immer joot jejangen

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Anomalia antwortete auf Gute und schlechte Nachrichten und eine Frage

31 Aug. 2016 22:43

Anomalia
Autor

0 Beiträge seit

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12 August 2026

Mehr

...heute ein kleiner Lichtblick.
Die Dame vom Medizinischen Dienst war da für die Pflegestufeneinschätzung.
Sie hat gesagt, sie empfiehlt Pflegestufe 2.
Das macht es wenigstens finanziell leichter.

Danke nochmals für die Antworten, es ist so gut, dass es euch gibt.
Am Anfang wollte mein Mann nicht mal was über seine Erkrankung wissen und jetzt muss ich ihm vorlesen, was ihr antwortet.

Danke und liebe Grüße
Ano

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Anomalia antwortete auf Gute und schlechte Nachrichten und eine Frage

30 Aug. 2016 22:11

Anomalia
Autor

0 Beiträge seit
12 August 2026

Mehr

Danke für die vielen Antworten!

Ich hab mich blöd ausgedrückt.
Die Situation hat sich seit März verschlechtert, die Bestrahlung war ab Mitte April und die Chemo seit Juli.
Die Werte sind seit Mitte August gut.
Wir halten auch noch Rücksprache mit der Onkologin, sie ist noch in Urlaub.

Danke euch!

Liebe Grüße
Ano

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

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Lucy antwortete auf Gute und schlechte Nachrichten und eine Frage

30 Aug. 2016 19:02

Lucy
Offline

408 Beiträge seit
12 Dezember 2012

Mehr

Hallo Ano,

kann auch nur von mir berichten, dass mit der Normalisierung der Werte die Knochenbrüche aufhörten. Eigentlich sollte es also nicht immer so weiter gehen. Aber ich sehe das genauso wie Christine. Ein Auftreten neuer - wie Du schreibst- "massiver" Knochenschäden unter laufender (erfolgreicher) Therapie - dazu sollten Eure Ärzte Stellung nehmen. Es ist natürlich immer möglich, dass ein ohnehin poröser Knochen auch unter der Therapie nachsintert, aber ich habe Dich so verstanden, dass viele neue Herde aufgetreten sind, obwohl die Werte gut sind. Da würde ich auf jeden Fall nachhören.

Liebe Grüße,
Lucy

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joseph antwortete auf Gute und schlechte Nachrichten und eine Frage

30 Aug. 2016 14:36

joseph

0 Beiträge seit
12 August 2026

Mehr

Hi Ano

Ich habe bei den drei Rückschlägen jeweils Knochenläsionen gehabt , es kam auch zu Brüchen (Rippe) ..... es gibt keine Garantie beim Myelom, dass dieses nicht wieder vorkommt

LG

Joseph

PS: der den ersten Regentag geniesst

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

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christine antwortete auf Gute und schlechte Nachrichten und eine Frage

30 Aug. 2016 11:12

christine

0 Beiträge seit
12 August 2026

Mehr

Bei mir entstanden zwar keine neuen Myelome, aber 2 Wirbel gaben nach: T2 der sich keilförmig verbog und zudem S1, der nach Bestrahlung vor Therapiebeginn ein Teil seiner Höhe verlor.

Prinsipiell werden die Knochen ja nicht über Nacht stärker. Mir hätte man damals vor dem "Kortison Rausch" erzählen sollen, dass schweres Tragen vermieden werden soll.

Mein Rat ist eigentlich, dass man jegliche Tragebelastung sofort einstellt, bis sich die Lage beruhigt hat.

Die Entstehung ganz neuer Herde während der Therapie bedarf auf jeden Fall einer Erklärung der Ärzte.

Viele Grüsse,

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