Autologe Stammzelltransplantation vor 8 Wochen, unklare Fieberschübe

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kaktusengel antwortete auf Autologe Stammzelltransplantation vor 8 Wochen, unklare Fieberschübe

07 Sep. 2016 19:21

kaktusengel
Autor

0 Beiträge seit

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12 August 2026

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Hallo Ihr,
herzlichen Dank für eure wertvollen Informationen.
Mein Vater wird in Bamberg (Heimatort) zur Zeit behandelt. Nachdem man ja dort nicht weiterkommt, hab ich heute in Würzburg angerufen. Der Arzt in Wü hatte gleich einen Verdacht und telefonierte mit Bamberg. Und siehe da, gleich wurde ein Medikament bestellt und mein Vater hat es inzwischen bekommen. Es handelt sich um eine Zytomegalieinfektion - Marc, das war ein Volltreffer, Respekt

Traurig nur, dass man sich als Angehöriger darum kümmern muß....warum nehmen Kliniken denn nicht untereinander Kontakt auf, wenn sie nicht weiter wissen.
Herzliche Grüße, bin sehr erleichtert und hoffe, das Ganze geht gut aus!
Claudia

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MarcWen antwortete auf Autologe Stammzelltransplantation vor 8 Wochen, unklare Fieberschübe

06 Sep. 2016 11:41

MarcWen
Offline

364 Beiträge seit
09 Juni 2011

Mehr

kaktusengel schrieb: Kennt jemand von euch länger andauernde Fieberschübe nach einer HD oder ähnliches? Wir sind langsam am verzweifeln....
Liebe Grüße
Kaktusengel

Ich hatte eine CMV Infektion. Recht selten, kann man aber anhand der Daten leicht prüfen, ob so etwas in Frage käme.

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christine antwortete auf Autologe Stammzelltransplantation vor 8 Wochen, unklare Fieberschübe

06 Sep. 2016 10:33

christine

0 Beiträge seit
12 August 2026

Mehr

Ich habe auch schon mal von Fieberschüben gehört, bin aber nicht mehr sicher, bei dem das nun war:-???? Das innere Thermostat ist ja manchmal völlig durcheinander - aber auch da gab sich nach einigen Monaten bei mir. Allerdings fror ich monatelang. Ich konnte eigentlich nicht still auf dem Sofa liegen, ohne zu frieren.

Ich finde übrigens auch, dass die Erholung nach einer HD gut 12+++ Wochen dauert, also nicht den Kopf hängen lassen!!

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

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Tetti1958 antwortete auf Autologe Stammzelltransplantation vor 8 Wochen, unklare Fieberschübe

06 Sep. 2016 10:23

Tetti1958
Offline

335 Beiträge seit
27 Dezember 2015

Mehr

Guten Morgen!

Das Frieren ist echt ein Phänomen! Sogar bei tropischen Temperaturen fange ich abends gegen 20 Uhr an zu frieren seit meiner Transplantation im März diesen Jahres!
Toll, dass du schon 6 Jahre in CR bist!

LG, Kirsten

Et häät noch immer joot jejangen

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

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Mira antwortete auf Autologe Stammzelltransplantation vor 8 Wochen, unklare Fieberschübe

06 Sep. 2016 09:06 - 06 Sep. 2016 09:12

Mira
Offline

419 Beiträge seit
03 Februar 2014

Mehr

Hallo,
Man geht bei der Autologe immer vom "Idealfall" aus. Das ist aber leider nicht immer so. Da kann man schon arg angeschlagen raus kommen. Ich habe Monate (!) gebraucht um einigermaßen wieder auf die Beine zu kommen. Es ist mittlerweile 5,5 Jahre her, ich weiß nicht mehr genau wann diese Fieberschübe, dieses Frieren und der Schüttelfrost vorbei waren. Aber es hat lange angehalten, die 2.HD kam daher auch nicht mehr in Frage.
Wenn ich hier so lese wie andere das "gepackt" haben werde ich neidisch. Aber das Ziel zählt und das ist das einzige was bei mir wirklich gut war: ich bin immer noch in CR. Der Weg dahin war lang und steinig, vielleicht auch weil wir wegen Allergien von der Standardbehandlung abweichen müssten.
Das einzige was dein Vater manchen muss ist regelmäßig zum Onkologen gehen, damit die Blutwerte im Auge behalten werden und Infektionen rechtzeitig erkannt werden. Er soll möglichst in Bewegung, immer schön Step by Step. Auch kleine Schritte bringen einen nach vorne. 8 Wochen sind nicht die Welt, zu diesem Zeitpunkt war ich aber definitiv alles andere als "fit".
LG
Mira

Letzte Änderung: 06 Sep. 2016 09:12 von Mira.

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Autologe Stammzelltransplantation vor 8 Wochen, unklare Fieberschübe wurde erstellt von kaktusengel

06 Sep. 2016 00:27

kaktusengel
Autor

0 Beiträge seit
12 August 2026

Mehr

Hallo Ihr,
ich wollte mich schon früher melden, aber wir sind erst aus dem Urlaub zurück gekehrt.
Vor 8 Wochen bekam mein dialysepflichtiger Vater die zweite HD und autologe Stammzelltransplantation.
Seitdem geht es nur noch abwärts. In der Aplasiezeit hatte er gleichzeitig eine starke virale und bakterielle Infektion und war 10 Tage auf der Intensivstation. Dann drei Tage nach Entlassung eine Pneumonie. Diese war soweit ausgeheilt, dann kam es zu einer Pilzinfektion der Lunge. Diese ist inzwischen am abklingen, aber die Fieberschübe bleiben. Insgesamt hat er inzwischen seit 18 Tagen jeden Nachmittag/Abend Fieberschübe.
Die Ärzte finden einfach nicht heraus, woher diese kommen. Nach der ersten Transplantation in Würzburg hatte er sich sehr gut erholt und ich frage mich, ob die Entscheidung zur zweiten Transplantation richtig war.
Kennt jemand von euch länger andauernde Fieberschübe nach einer HD oder ähnliches? Wir sind langsam am verzweifeln....
Liebe Grüße
Kaktusengel

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