Romosozumab

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scaredy-cat antwortete auf Romosozumab

06 Feb. 2022 21:06

scaredy-cat
Offline

153 Beiträge seit
31 März 2021

Mehr

sorry, ich nochmal mit einem anderen, auch sehr alten Link:
www.onkodin.de/e6/e38842/e42271/e42294/
Wurde das also getestet und als schlecht befunden…? :sad:

Erstdiagnose 12/2020, IsaKD seit 11/23

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

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scaredy-cat antwortete auf Romosozumab

06 Feb. 2022 20:51

scaredy-cat
Offline

153 Beiträge seit
31 März 2021

Mehr

…uuund ich habe mal weiter gegooled und bin über „Teriparatid“ gestolpert. Was ist denn damit? Dazu steht im Aerzteblatt:
„Teriparatid, das für eine 24-monatige Behandlungszeit bei Osteoporose zugelassen ist, zeigt eine gute Verträglichkeit. Unerwünschte Nebenwirkungen waren vor allem Gliederschmerz, Übelkeit und Schwindel. Der Serum-Calcium-Spiegel bleibt in der Regel im mittleren Normbereich und bedarf keiner ständigen Überwachung.“
… hat das auch schon mal wer von Euch in Verbindung mit MM angesprochen?
Liebe Grüße
Nuschl

Erstdiagnose 12/2020, IsaKD seit 11/23

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scaredy-cat antwortete auf Romosozumab

29 Dez. 2021 16:55

scaredy-cat
Offline

153 Beiträge seit
31 März 2021

Mehr

…aber es steht ja das dabei, in der Fach-Info: „ oder bei immunkompromitierten Patienten (z. B. nach Transplantionen, mit Glukokortikoid-Dauertherapie) ohne vorliegende weitere Studien ungünstig erscheinen lassen.“

das ist ungünstig

Erstdiagnose 12/2020, IsaKD seit 11/23

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

Deprecated: Creation of dynamic property Kunena\Forum\Libraries\Layout\KunenaLayout::$profile is deprecated in /www/htdocs/w0185eeb/myelom.villa-ester.de/libraries/kunena/src/Layout/KunenaBase.php on line 575

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scaredy-cat antwortete auf Romosozumab

29 Dez. 2021 14:34

scaredy-cat
Offline

153 Beiträge seit
31 März 2021

Mehr

Wow, das klingt ja wie ein Super-Zeug… Können „wir als MM-Forum-TN“ eigentlich auch Studien anregen bzw anfordern? Ist bestimmt eine blöde Frage, aber ich stell sie mal trotzdem… Bei uns ist es jetzt so, dass der Horror der Krebsaktivität in den Hintergrund getreten ist und uns nun das Ausmaß der Wirbelsäulenzerstörung klar gemacht wird… Wir dachten, nach 30 Bestrahlungen (Höchstmaß) und nem 3/4 Jahr Zometa wäre nun alles wieder einigermaßen. Pustekuchen… Daher… so ne Studie wäre schon toll…
Nuschl

Erstdiagnose 12/2020, IsaKD seit 11/23

Bitte Anmelden oder Registrieren um der Konversation beizutreten.

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robbie antwortete auf Romosozumab

08 Nov. 2021 14:13

robbie

0 Beiträge seit

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12 August 2026

Mehr

Hallo,
gibt es neue Erkenntnisse zur Verordnung von Romosozumab bei MM ?
Oder besser gesagt, hat ein Arzt es schon bei einer weiblichen Myelom-Patientin verordnet ?

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mission_remission antwortete auf Romosozumab

17 Jan. 2021 22:52 - 17 Jan. 2021 22:53

mission_remission
Offline

31 Beiträge seit
12 Februar 2020

Mehr

Ich habe meine Onkologen nach Romosozumab gefragt und er hat mir folgende Antwort gegeben:

Unabhängig davon, ab die theoretischen Wirkmechanismen des Medikamentes sinnvoll sein könnten oder nicht:
Die Zulassung umfasst nur die Osteoporose bei post-menopausalen Frauen.
Das Medikament ist also für Männer und für Myelompatienten nicht zugelassen. Wir können es Ihnen daher nicht geben.
Völlig zurecht muss man fordern, dass das Medikament auch in dieser Indikation getestet wird und zeigt, ob es dort von Vorteil ist.

Heißt für mich, dass es also durchaus ein spannendes und auch das richtige Medikament für Knochenprobleme beim MM sein könnte, es ist aber dafür noch nicht zugelassen, da noch Studien(Ergebnisse) fehlen. Mein Onkologe sieht zudem keine dringenden Bedarf, da die Skeletterkrankung bei Myelompatienten mit einer gut kontrollierten systemischen Erkrankungsaktivität nicht hoch ist.

Letzte Änderung: 17 Jan. 2021 22:53 von mission_remission.

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